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9420 7203 or email

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Would you like to find out more about peer support groups in WA?


 Are you interested in participating in research projects?





Telethon Kids Institute has developed a questionnaire to measure 'quality of life' in children with Down Syndrome.

They are seeking parents with a school aged child or adolescent with Down syndrome to road test their new questionnaire.

Siblings Australia is running a project, "Creating Capacity: Support for Adult Siblings Project" to build the capacity of siblings to understand the NDIS and to support their brothers and sister with disbility in the transition to the NDIS environment.

A reference group is being set up to guide the implementation of the project, and the group will oversee the governance and help maximise outcomes for siblings, people living with disability and thei broader families in the light of the NDIS.

If you would like to find out more about this project, or be part of the reference group:



Click on the image above to read the report....

"The lives of people with disability are often secret lives. We are routinely segregated and isolated from our non-disabled peers – we live, work and play in places which are not often frequented by those without disability. Often, we are lonely. If we do not have families, paid staff are sometimes the only people in our lives. We are shut out by barriers to participation in Australian life, and shut in when we are hidden in institutional settings."

(Report authors Samantha Connor and Ben Keely)

The Peer Connect website is for people living with disability, their families and supporters.

The website has information about having choice and control in your life, the NDIS, connecting with Peer Support Networks and getting involved with your community.


Duchenne Foundation in WA have published a great new story for children called "That's What Wings Are For". Part proceeds from sales of the book will go to the Duchenne Foundation.

Read more about it here, including an author interview 






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DDWA has a range of resources

- hard copy booklets

- links to publications you can download

- recorded presentations on different topics which are on our You Tube channel DDWA Inc

If you would like to order one of these booklets or resources to be sent to you please contact us.








May 2017:

Federal Budget

The Federal Government will introduce legislation to increase the Medicare Levy by 0.5 per cent, from 1 July 2019.

The increase in the levy will provide the necessary funding to ensure the NDIS is fully funded and sustainable into the future.

Read the Government's Budget Media Release here: BUDGET 2017-18



Developmental Disability WA is a not for profit organisation which has been a leader in the disability sector since 1986. As the peak advocacy organisation in WA for people with intellectual and other developmental disability and their families, Developmental Disability WA welcomes membership from people who have an interest in advancing the rights and needs of people with disability and their families.

DDWA began as an organisation with the purpose of providing a representative voice for a number of organisations which were providing services to people with developmental disabilities and their families.  The organisations found that they had in common a number of concerns, issues and interests relating to the support, services and opportunities available to people with disability, in particular people with high support needs.

DDWA works to advance advocacy, policy and community, for and with people with intellectual and other developmental disability and their families, and the people who support them.



People with developmental disabilities and their families live their lives their way.


DDWA creates lasting positive change by:

  • supporting people with developmental disability and their families to have a strong voice
  • partnering with others to develop more connected and inclusive communities, and
  • influencing government and other decision makers


People are the experts in their own lives and have the right to self-determination and contribution.

Developmental Disability WA's members and constituents determine the priorities for change.  We have our finger on the pulse of the issues that are important to people with developmental disability and their families. 

We are most effective and influential when we combine our voices, stories and knowledge.

Read more about our Vision | Purpose | Values


What is Side by Side?

Side by Side is the name of DDWA's program for famlies who have a family member with disability and who has behaviour which is at times challenging.

Side by Side was co-designed by families, for families and as a strengths based program it aims to build resilience, knowledge, friendship and support.




DDWA is a not-for-profit organisation and all donations over $2 are tax deductible.
Your donation will contribute towards
- more workshops and information sessions for individuals, their family members and the people who support them 
- more resources being developed for families and professionals
- more advocacy and representation to the decision makers on the issues - - you let us know about and work on with us
Please get in touch if you are interested in supporting DDWA,  or would like to find out more about our work.